چکیده (انگلیسی):

Background:Chronic Lyme disease is a term that describes a constellation of persistent symptoms in patients with
or without evidence of previousBorrelia burgdorferiinfection. Patients labeled as having chronic Lyme disease have
a substantial clinical burden. Little is known about chronic Lyme disease patient experiences in the healthcare
system and their relationships with healthcare providers. The purpose of this study was to gather insights about the
experiences of patients who carry a diagnosis of chronic Lyme disease in the United States healthcare system.
Methods:Qualitative, phenomenological study in 12 adult participants who identified themselves as having
chronic Lyme disease. Semi-structured face-to-face in-depth interviews were conducted, 60–90 minutes in length,
focusing on perceptions of disease burden and of their healthcare providers, using the dimensions of the Health
Belief Model. Transcribed interviews were analyzed for emergent topics and themes in the categories of beliefs/
understanding, personal history/narrative, consequences/limitations, management, and influences on care.
Results:Enrollment continued until theoretical saturation was obtained. Four major themes emerged from
participants’ descriptions of their experiences and perceptions: 1) changes in health status and the social impact of
chronic Lyme disease, 2) doubts about recovery and the future, 3) contrasting doctor-patient relationships, 4) and
the use of unconventional therapies to treat chronic Lyme disease.
Conclusions:Participants reported a significant decline in health status associated with chronic Lyme disease and
were often unsatisfied with care in conventional settings. Negative experiences were associated with reports of
dismissive, patronizing, and condescending attitudes. Positive experiences were associated with providers who were
reported to be attentive, optimistic, and supportive. Consultations with CAM practitioners and use of CAM therapies
were common. Actively engaged and sympathetic clinical encounters may foster greater satisfaction in healthcare
settings.