چکیده (انگلیسی):

Background:Previous research has highlighted that many GPs lack the confidence and knowledge to diagnose
and manage people with CFS/ME. Following the development of an online training module for GPs, and an
information pack and DVD for patients, this study explored the extent to which these resources can be implemented
in routine primary care.
Methods:Semi structured qualitative interviews were completed with patients and GPs across North West England. All
interviews were transcribed and analysed using open exploratory thematic coding. Following this thematic analysis, the
authors conducted a further theory-driven analysis of the data guided by Normalisation Process Theory.
Results:When used in line with advice from the research team, the information resource and training were perceived
as beneficial to both patients and GPs in the diagnosis and management of CFS/ME. However, 47 % of patients in
this study did not receive the information pack from their GP. When the information pack was used, it was often
incomplete, sent in the post, and GPs did not work with patients to discuss the materials. Only13 out of 21 practices
completed the training module due to time pressures and the low priority placed on low prevalence, contentious,
hard to manage conditions. When the module was completed, many GPs stated that it was not feasible to retain
the key messages as they saw so few patients with the condition. Due to the complexity of the condition, GPs also
believed that the diagnosis and management of CFS/ME should take place in a specialist care setting.
Conclusion:While barriers to the implementation of training and resources for CFS/ME remain, there is a need to
support CFS/ME patients to access reliable, evidence based information outside primary care. Our findings suggest that
future research should develop an online resource for patients to support self-management.